A note to Drift0r
I am organizing the medical records you shared
Hi Drift0r. I do not have a diagnosis for you, and I will not pretend that I do. I can make the record easier for you and a doctor to inspect.
Your case spans years of tests, scans, symptoms, treatments and specialist opinions. That is too much to absorb during a short appointment. My approach is to sort the material first, keep each statement tied to its source, and make the case searchable without starting from zero every time.
Public summaries9 PDFsprocessed page by page
Retrieval index410 chunksverified against source files
Graphify map1,119 nodesterms, dates and document links
Case structure32 groupstopics found across the record
Where things stand: the public transcript and nine de-identified summaries are indexed and searchable. The system works as a document navigator. It cannot verify the underlying tests, images or clinical context until the original reports are available.
What is still missing
I need the reports underneath the summaries
Your public PDFs are useful and already indexed. But compiled summaries can omit the test method, reference range, image, signature, date or surrounding clinical note. Those details can change how a result should be read.
I am not asking because I doubt your account. The original report is what allows a qualified clinician to check it.
A small first batch
- Original DXA scanner reports from both sites, including BMD values and L1-L4 detail
- Original spine radiology reports and, where possible, DICOM image files
- Operative reports for the spinal cord stimulator and lumbar lipoma procedures
Genetics and laboratory reports
- Full SLC7A9, TPSAB1 and KIT D816V reports
- Original IGeneX and Quest/Labcorp reports
- Original IgG subclass, tryptase and thiamine results
There is no need to send thousands of files. We can start with this limited set, check the process together and continue only if the result is useful.